October 19th - Lunch - Special Interest Group: Advocating for Policy: How to Champion Health Literacy?
This session will: 1) examine existing health literacy policies across the localities, states or countries assimilating common attributes vs. outlying tenets and 2) compare/contrast these policies with the World Health Organization Health Literacy recommendations. Special Interest Group members will collaborate to identify existing policies and connect with IHA or IHLA members within the locality, state or country where the policy exists to potentially contribute to the discussion. Those sharing will discuss how the policy was championed and its impact on health literacy practices within that area. This panel will empower attendees with tools for championing health literacy policy while cataloguing existing health literacy policy for reference.
Elena Carbone, DrPH, RDN, FAND
Professor and Chair, Department of Nutrition at the University of Massachusetts Amherst
Dr. Carbone has over 25 years of experience in health education and nutrition communications. Her mixed methods research engages multi-ethnic communities with low health literacy skills and integrates behavioral interventions to promote health and prevent chronic disease complications. She has served as PI of numerous community-based research studies. She is currently working with colleagues in England and Canada on a remote intervention to build resiliency among pregnant women during COVID. This is an extension of a maternal health literacy grant for which she served as PI with colleagues from Ghana, Australia, England and the US. She recently co-authored a textbook chapter entitled, Reintegrate Empowerment & Health Literacy to Advance Public Health and Healthcare Delivery (IOS Press, 2020).
Dr. Carbone is a Registered Dietitian and Fellow of the Academy of Nutrition and Dietetics. She is Professor and Chair of Department of Nutrition at the University of Massachusetts Amherst. She also serves as Co-Chair of the International Health Literacy Association’s Standing Committee on Policy & Advocacy and the UMass Amherst representative on the WorldWide University Network’s Public Health Steering Group. She has served as an Editorial Committee member of the Journal of Nutrition Education and Behavior and the Journal of Nutritional Disorders & Therapy. Dr. Carbone is also Founding Director of the Community-Engaged Research Program at the Commonwealth Honors College and she been an Advisory Board Member and Instructor at the Gustolab Institute Center for Food and Culture in Rome, Italy since 2012.
Joy Deupree, PhD, APRN, WHNP-BC
Professor and Associate Dean for Practice Innovation, Partnerships & Policy - University of South Carolina, College of Nursing
Joy Deupree, PhD, RN, WHNP-BC is a Professor and Associate Dean for Practice Innovation, Partnerships, and Policy at the University of South Carolina College of Nursing in Columbia, South Carolina. A Robert Wood Johnson Foundation Executive Nurse Fellow 2014-2017, she teaches Leadership in the doctoral program and is actively involved in health literacy research for numerous projects that target underserved and vulnerable populations in the southeast.
A certified Laubach literacy tutor since 1997, Dr. Deupree began her research in the field of health literacy in 2002 as co-investigator for a grant to study health literacy and caregiver fever management for children ages 6 months to 6 years. In 2004, Dr. Deupree developed the curriculum for a popular campus-wide course at UAB entitled Health Literacy: Identification of At-Risk Populations, which continues to be offered twice annually.
She earned her PhD in Health Promotion/Health Behavior in 2011 via a joint program from the Schools of Public Health and Health Education at UAB, Birmingham, Alabama and the School of Human Studies at the University of Alabama, Tuscaloosa, Alabama. Using her expertise in the field of health literacy her dissertation study entitled Health Literacy: A Community-based Mixed Methods Study of Prescription Medication Self-management among Community Dwelling Older Adults provided significant findings regarding how seniors cope with the many challenges of polypharmacy management. Recognizing Dr. Deupree’s expertise and leadership in health policy and health literacy, in 2015 by gubernatorial Executive Order #4 Dr. Deupree was appointed to serve on the Alabama Health Care Improvement Task Force. During her tenure on the task force, she organized and hosted a statewide Health Literacy Summit to determine the readiness of the state to support an organized effort for health literacy. Results of the study led her to establish and chair the Alabama Health Literacy Initiative which continues to be sustained by the UAB School of Nursing. In 2017, the Centers of Disease Control and Prevention added Alabama to the list of recognized statewide health literacy initiatives.
Post Doc Researcher, Faculty of Educational Science at Bielefeld University, Germany
Orkan Okan, First Staatsexamen, Dr. phil., is post doc researcher at the Faculty of Educational Science at Bielefeld University, Germany. He was one of the founding members of the Interdisciplinary Centre for Health Literacy Research. Orkan is project manager and researcher in the German national Health Literacy in Childhood and Adolescence research consortium (HLCA, German Federal Ministry of Education and Research) and project lead in the Health Literate Schools project (HeLit-Schools, German Federal Ministry of Health). Together with his research colleagues, Orkan is coordinator of the global COVID-19 Health Literacy Consortium and PI of the German coronavirus-based health literacy study. His current research addresses health literacy in pupils, teachers, and schools, health literacy policies analyses, and health literacy measurement in children. Most recently, he has been engaged with health literacy research related to COVID-19 and infodemics. Orkan is co-editor of two health literacy books “International Handbook of Health Literacy” and “New Approaches to Health Literacy”.
Chris Trudeau, JD
Associate Professor, University of Arkansas, Little Rock, Bowen School of Law
Christopher R. Trudeau, JD, is an Associate Professor at the University of Arkansas Little Rock, Bowen School of Law. He also leads the Regulatory Knowledge & Support function for the University of Arkansas for Medical Sciences’ Translational Research Institute. Professor Trudeau is a recognized expert on clear legal communication, informed consent, and health literacy. He is the first lawyer to be appointed to the US National Academies’ Roundtable on Health Literacy and the Food & Drug Administration’s Risk Communication Advisory Committee. He frequently speaks on creating clear legal documents that people can understand on reducing organizational risk and while increasing compliance.
Teresa Wagner, DrPH, MS, CPH, RD/LD, CHWI
Assistant Professor, Department of Lifestyle Health Sciences - SaferCare Texas
Dr. Teresa Wagner graduated with a Doctorate in Public Health from the University of North Texas Health Science Center where she is an Assistant Professor in the School of Health Professions and Clinical Executive for Health Literacy at SaferCare Texas. She holds a Bachelor’s Degree in Dietetics from Texas Christian University and Master’s Degree in Nutrition from Texas Woman’s University.
Dr. Wagner is a registered and licensed dietitian and a member of the Academy of Nutrition and Dietetics as well as the Texas Academy of Nutrition and Dietetics. She is certified in public health and a certified community health worker instructor. As a clinician, she was recently certified in Lifestyle Medicine and Health Coaching. During Covid-19, Dr. Wagner has completed multiple media segments, webinars and blog posts addressing nutrition for population health as well as personal wellness while practicing self-isolation. She has received both the Media Award and Distinguished Scientist Award from the Texas Academy of Nutrition and Dietetics.
In her role at SaferCare Texas, she has established a multi-stakeholder health literacy collaborative with the DFW Hospital Council Foundation and testified on health literacy legislation in Texas. Her testimony helped place health literacy into the State Health Plan. Recently, she developed the health literacy policy resolution for the Texas Public Health Association. She has delivered multiple programs, speaking engagements and trainings on health literacy issues. Currently, she teaches Health Literacy & Communication in the Lifestyle Health Sciences Program. As a result of her work locally, regionally & nationally, she received the 2018 Texas Health Literacy Hero Award as well as the 2020 Distinguished Alumni Award from Texas Christian University.