October 20th - Breakout: The MRCT Center Health Literacy in Clinical Research Website: Supporting Clear Communications Throughout the Clinical Research Life Cycle
In this session the presenter will provide an overview of the MRCT Center’s multi-stakeholder initiative to develop and launch a Health Literacy in Clinical Research website for the clinical research community to use when creating participant-facing materials. The website itself will be showcased through a discussion of the principles of health literacy in clinical research, a review of available resources, and a presentation of case studies. Current and future efforts to support the application of health literacy through a collaboratively developed plain language research glossary as well as other resources will also be reviewed.
At the end of the session, attendees will be able to:
- Describe the application of health literacy principles throughout the clinical research life cycle.
- Access and use resources on the MRCT Center’s Health Literacy in Clinical Research website to develop participant-facing materials and processes that support participant understanding.
- Share best practices with their colleagues and team members to promote greater integration of health literacy best practices into their clinical research processes.
Sylvia Baedork Kassis, MPH, CYT
Program Manager, Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard
Sylvia Baedorf Kassis, MPH, CYT, is a Program Manager at the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard. With 20 years of clinical research-related experience in Canada and the United States of America, her expertise includes ethical/regulatory review of research, clinical trial workforce training and capacity building, and study coordination, management and oversight. Sylvia’s clinical research interests include understanding trial participants’ experiences and incorporating their insights to improve study processes and ensuring all trial stakeholders are supported in the ethical and compliant conduct of studies involving participants and their data/samples. Sylvia earned a Master of Public Health degree in Global Health from Boston University School of Public Health (2008) and a Bachelor of Science from the University of Toronto (2001).